Friday, May 1, 2015

Baby Steps

Due to illness related constraints I cannot stand for very long periods of time.

If I go to work in the morning and go about whatever it is I do at work and my feet aren't that big and too puffed up I can at least cook dinner, cut vegetables while sitting down and occasionally stirring the pot. This is why I've been making soup for dinner because most of their recipes just calls for you to saute the ingredients together, wait 15 mins, add soup and forget for the next 15-20 mins. 

Lately I've been making and achieving little goals. It first started with being able to go to the restaurant and picking up food, then having dinner or lunch, then it was being able to go to the grocery.

I know I overdid it when we just went to Mudderella(7 miles) straight on from being sick for 2 months then well enough to do normal stuff for 2 weeks. I signed up for another run, but this is just 5k(3.5 miles) of the Electric Run . So hopefully it won't be as bad as before.  

This list here are my baby goals... goals I wish to achieve after I meet with the Rheumatologist (finally!) in the next few weeks.
- go to the Studio City/ Sherman Oaks Farmers Market
           - 10/26/14 Studio City Farmers Market
           - 11/11/14 Sherman Oaks Market
- go to the El Monte Night Market - wohoo I think we can do this =)
           - yay it's 11/21/2014 and I don't feel as great but I bought hopia from Kalesa Grill yesterday  
             after my  doctor's visit to bring to my mom so they can taste it, which means I'm commited
             to going to this today =). I did it! and it was so much fun!
- go biking to Lake Balboa
           - 03/22/2015 we joined the Ciclavia bike ride and we did 12.52 miles round trip. With the rate              I'm going I might be able to go camping this summer yay!
- go to the beach(Redondo pier) and walk around like we used to do before and eat crab =)
          - we did this for my birthday yay!  04/18/2015
- go to my parents and bring the dogs to the park
          - 05/01/2015 we've been doing this several weekends for the past few months now so it's great                yay!
- go to Mike's Parents and just spend the day without being too bloated
          - Thanksgiving dinner will be at Jonathan's and Beth's this year because they have the twins and can't travel too much with 3 babies in tow. So hopefully the day will be good.

It's been 4 months now(11/01/2014) since I've gotten sick, I'm so tired of all these crazy HMO rules and freaking transferring to doctors that do not care. I moved to PPO and hopefully I can just up and go and move on to another doctor when I need to. I can't wait for January.

So here are my goals hopefully I can do most of them before the end of the year. I'm so tired of being sick all the time....

05/01/2015 Update
The Rheumatologist was a failed attempt at getting better. She prescribed another cancer medicine that not only made me sicker but it started to affect my liver. It wouldn't have sounded so bad if she told me right away, she told me 2 weeks after my blood work was faxed to her, Dr. Firooz did not review my charts until she saw was sitting in front of me. Who wouldn't be pissed off when your doctor looks at your chart and starts saying "oh my gosh, this is bad!" Your liver is not doing good." Then looks clueless afterwards, I told her I kept asking you last time you saw me if my kidneys and liver is okay and you kept saying yes, I told her don't tell me you did not check. It pissed her incompetent ass off that I told her that. I told her I know you are trying but you have to make sure I don't get sicker. To make the story short, I was fine last time she saw me, I should stop the meds she gave me and I need more blood work and she still doesn't know what's wrong with me. She didn't even tell me our session is done, she told me she'll schedule something and left.

She was always late to her appointments, 1-2 hours late, entertaining medical representatives when she has 5 patients waiting for her, looks at your chart when she sees you and she just keeps on typing on her laptop while you tell her what's wrong with you. She's trying to be modern but it comes across as being pre-occupied and un-caring. She just drained me every time I saw her.

For the past three months now I've been seeing Dr Mao and it seems to be promising,  I'm taking herbal medicine and this anti-inflammatory supplement and so far I have had little swelling in my legs and feet, I feel more energetic to do stuff, I still get tired some weekends but it's tolerable because some weekends I can just go and do anything and everything.

 Published on
11/1/14 6:35 PM
Pacific Standard Time

 Published on
11/21/14 10:06 AM
Pacific Daylight Time

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